HLHS
The Reality of My Life When someone first meets me they would never believe that I live with a very serious heart condition. My bright eyes, loving smile, and positive outlook of my life hides a very serious and painful condition. I am living with half a heart. I have Hypoplastic Left Heart Syndrome (HLHS). I have had 5 open heart surgeries; having these surgeries left me with cirrhosis of the liver, hypertension, and scoliosis along with other mild issues. Every morning I wake up at 6:50am; usually I haven’t slept well due to my back tensing up in the middle of the night. The first thing I do is go to the kitchen and drink a cold cup of water right away to wake myself up. I then splash cold water on my face to wake up the rest of my body. Most of the tim...